About the earlier search strategy

As mentioned in the last post (“Overview of September’s tasks”), a systematic search for articles about ‘user participation in research’ was done a few years ago, more precisely 15 September - 4 October 2017. The document containing all search strings and the listed articles is available here. Systematic searches were then conducted in four different databases: Embase, Scopus, Web of Science (Core Collection) and Academic search Complete. The search terms employed were divided into three sections:

  • ( “user participation” OR “public involvement” OR “user involvement” OR “participant involvement” OR “patient partnership” )
  • ( research )
  • ( attitude* OR belief* OR opinion* OR perception* OR ideas OR judgement* OR experience* OR “ways of thinking”)

Updating the terminology

Those terms can be compared to the terms that I came up with in my recent post (“Overview of September’s tasks”). I have marked the terms not employed in the earlier literature searches in bold text:

  • attitudes, awareness and willingness. Possibly also perception (of).
  • public involvement, user involvement, user participation, public participation, public and patient involvement (PPI), user-driven research, community-based participatory research, co-design, participatory design, co-production of knowledge, patient-driven research, transdisciplinary research, collaborative research, citizens’ involvement, citizens’ participation, citizen science.

Updating the search strings

The question is what terms I should use for the coming literature searches. If I just add the new terms to the ones employed before, I get the following three sections:

  • ( “user participation” OR “public involvement” OR “user involvement” OR “participant involvement” OR “patient partnership” OR “public participation” OR “public and patient involvement” OR “PPI” OR “user-driven research” OR “community-based participatory research” OR “co-design” OR “participatory design” OR “co-production of knowledge” OR “patient-driven research” OR “transdisciplinary research” OR “collaborative research” OR “citizens’ involvement” OR “citizens’ participation” OR “citizen science”)
  • ( research )
  • ( attitude* OR belief* OR opinion* OR perception* OR ideas OR judgement* OR “ways of thinking” OR experience* OR awareness OR willingness )

But after some considerations, maybe I should add a few more search words or phrases. I am in fact considering to make a new division of the search phrases in the following way:

  • citizen* OR public* OR people* OR patient* OR individual* OR person*
  • attitude* OR belie* OR opinion* OR perceiv* OR perception* OR idea* OR judgement* OR “ways of thinking” OR experience* OR aware* OR willing* OR value*
  • involv* OR engag* OR participat* OR collaborat* OR user-driven OR patient-driven OR co-produc* OR transdisciplinar* OR community-based
  • research* OR scien*

New search string syntax for the Scopus database

I used the updated search phrases in the Scopus database (without any limitatons in relation to ‘articles’, only English, etc.) I first tried to conduct searches with the following syntax:

  • TITLE ( citizen* OR public* OR people* OR patient* OR individual* OR person* )
  • AND TITLE ( attitude* OR belie* OR opinion* OR perceiv* OR perception* OR idea* OR judgement* OR “ways of thinking” OR experience* OR aware* OR willing* OR value* )
  • AND TITLE ( involv* OR engag* OR participat* OR collaborat* OR user-driven OR patient-driven OR co-produc* OR transdisciplinar* OR community-based )
  • AND TITLE ( research* OR scien* )
  • Limit to articles, reviews, editorials, English.
  • 302 document results (2020-09-12)

However, I thought the search was a little narrow, and thus decided to broaden one section as below:

  • TITLE ( citizen* OR public* OR people* OR patient* OR individual* OR person* )
  • AND TITLE-ABS-KEY ( attitude* OR belie* OR opinion* OR perceiv* OR perception* OR idea* OR judgement* OR “ways of thinking” OR experience* OR aware* OR willing* OR value* )
  • AND TITLE ( involv* OR engag* OR participat* OR collaborat* OR user-driven OR patient-driven OR co-produc* OR transdisciplinar* OR community-based )
  • AND TITLE ( research* OR scien* )
  • 1,599 document results (2020-09-12)

This resulted in a possible too wide list of articles to handle but when I started to go through them, I realized that the result was very relevant even though some articles were outside of the scope. I went through the list and saved what I considered relevant articles to a list. After going through the first 600 articles I had marked 200 articles as relevant (including some marked from the first search and probably some doubles).

I think that is good enough for me, but I will write to MB and ask him to conduct the same search in the other databases (Embase, Web of Science Core Collection and Academic search Complete) to assure that I am not missing something essential.

Oops! I just realised after looking at the article OJ recommended that I have missed out the search term motivation* (and its synonyms like reason*, etc.). I would need to include that and do the search all over again, but I guess I just ask MB to help me out. Here are all relevant synonyms to motivation I could come up with:

  • impetus*
  • incentive*
  • inclination*
  • interest*
  • motive*
  • reason*
  • wish*
  • disposition*
  • drive

When including these search terms the search phrases become:

  • TITLE ( citizen* OR public* OR people* OR patient* OR individual* OR person* )
  • AND TITLE ( attitude* OR belie* OR opinion* OR perceiv* OR perception* OR idea* OR judgement* OR “ways of thinking” OR experience* OR aware* OR willing* OR value* OR impetus* OR incentive* OR inclination* OR interest* OR motive* OR reason* OR wish* OR disposition* OR drive*)
  • AND TITLE ( involv* OR engag* OR participat* OR collaborat* OR user-driven OR patient-driven OR co-produc* OR transdisciplinar* OR community-based )
  • AND TITLE ( research* OR scien* )
  • 361 document results (2020-09-12)

When just including the new terms in that section (in order to exclude the documents I had already got), this was the result:

  • TITLE(citizen* OR public* OR people* OR patient* OR individual* OR person*)
  • AND TITLE(impetus* OR incentive* OR inclination* OR interest* OR motive* OR reason* OR wish* OR disposition* OR drive*)
  • AND TITLE(involv* OR engag* OR participat* OR collaborat* OR user-driven OR patient-driven OR co-produc* OR transdisciplinar* OR community-based)
  • AND TITLE(research* OR scien*)
  • 67 document results (2020-09-12)
  • Added half a dozen documents to the list
  • Had 207 documents in the list, when limiting to articles, reviews, editorials in English, 181 remained. I think this is a good start.